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I finally officially started GH & have been on it for 7 months. Around the 5th month I really started noticing more positive changes however not quite enough. Dr Valika and I checked my levels and they are still not anywhere near optimal so she increased them just about a week ago. I have met a wonderful pain specialist who's helping me w my leg/feet pain. Overall I have gone through so much, and can't believe I am where I am. I'm beginning to lose weight, Ive lost 10in off my stomach alone. My sleep has improved, It's amazing what finally getting some of the hormones balanced will do. Although GH takes a while to build up and it's still not at an optimal level it's getting better. In balancing hormones and taking the edge off of pain I've really been able to do more and be more active. I still have my days. I don't want anyone to think everything is 100%.  I'm just finally closer to my "new normal". For once, in a VE

Hey There! Happy New Year! I so hope your enjoying the new year, and many blessings are headed your way this year! I have a few VERY exciting things to report: 1.) As I mentioned in my summer post, that I realized didn't post until now I FINALLY was able to get GH prescribed and covered by Insurance!  I have been on it for about 10 months now.  After the first 5 or 6 months I really started noticing changes and then after a couple months I reached a plateau.  Figuring out the dosage and managing the hormones is such a huge task, but one I am grateful to have to opportunity to do!! & 2) The EPIC Foundation (epictogether.org) has launched and not only am I the Person of the month this month, but I was asked to work for them as Lead Advocacy Specialist!  I could not be more thrilled for this opportunity! If you are looking for a great place to get recent and up to date information on Cushings and other Invisible Chronic Illnesses, or looking for a place to help advocat

3 years. 54days & counting... I was so excited in December of 2014 when I woke up on my 29th Birthday to a beautiful package at my door. GH had arrived and boy was I thrilled!!   I knew the process & realized it could take sometime before noticing any subtle changes and I was ok with that.  Was there some disappointment? You bet!  Having to wait 6-9 months maybe even a year for something to help is a while to wait but I was oh so grateful and filled with joy that I could finally start! In January 2015 my insurance changed.  I was no longer allowed to get a prescription from an out of network dr. January 2015 All that work to get the prescription.  All the calls.  All of it shattered, and gone.  Onward and upward. In March I decided to get back at finding a local endocrinologist.  After waiting two months to hear back I finally got into one in Greenbay.  The moment I saw him I knew I was going to regret it.  He was arrogant, wanted to argue my previous di

First and fore most Id like to invite you to simply "like" a page on Facebook: https://www.facebook.com/Hug.A.Cushie A friend of mine is making a documentary about Cushings.  Not only to share the stories of many lives touched by Cushings but to also raise awareness.  Cushings, is not as rare as the medical community makes it out to be.  It is just not researched enough.  When your health is beaten down and you have no way to defend it except for fighting back--by looking---researching you become PASSIONATE about your diagnosis when you finally receive it and want to help others from going years un-diagnosed.  Help my friend Karen raise awareness.  Help ME raise awareness.  Like the page! "The most beautiful stones have been tossed by the wind and washed by the water and polished to brilliance by life's strongest storms" This quote came to me on a card from my mama just a few months in to this long road of recovery. On June 11th 2014 I will be 18mo

Today marks 18 weeks POST OP (Just about 4 months&1 week )!! Just got my computer back up and running and found a piece of my journey I had typed a WEEK BEFORE surgery:   I’ve been mocked, ridiculed, told I was crazy and all though those things have hurt; I’ve never let them keep me down.  After all these years, I finally have an answer.  It feels so wonderful, but at the same time causes shock to my core.  Right now I’m dealing with grieving what I’ve lost.  I went over 15 years without a diagnosis.  I’ve heard a lot of things a patient should never hear.   I heard I was nuts-- that I should just relax—nothing’s wrong with me, they can’t find ANYTHING. I have had great support from some family and friends, but have also lost many along the way.   I’ve always fought to be “ME”.  My life is so much different from the way I planned it to be.  I had so many dreams and ambitions.  As much as Cushing's has taken from me I’ve learned to value and appreciate every blessing in m

For those following, I just wanted to keep you updated! On Tuesday April 2nd 2013, I had a biopsy done of a nodule they found in my thyroid. My little brother came to my house to help me with the kids so Matt didn't miss work. The nodule was in the back of the gland so they had to jab a needle in and press and jab jab jab 6 separate times. It was extremely painful,  and I was so shook up I had my brother in law pick me up because I was to upset to drive.  My throat hurt for over a week. Thankfully we've learned results were benign. I had a phone appointment with Dr Friedman on April 13th & he has ordered extensive testing both in May&June for me. He calmed my fears and told me he firmly believes that all be feeling much better as the months go by and we get some of these things fixed: 1. Severely low Vit D. Some people can do high doses once in a life time, and some half to stay on a considerable amount for a lifetime...it's something wi