Unwritten

By this point in time I was feeling so so desperate, as if I wasn't already before---fighting for so long without a diagnosis, finally having one and no one will offer treatment!  To date I've been turned away or ignored by 5 different neurosurgeons!  Most of which could see the tumor, but didnt agree with a cyclical cushings diagnosis ---because they didnt believe it existed.  Hello, here I am!!! I'm proof!  One test I'd pondered for a while, but never had anyone order because of how invasive it's known to be, is called an IPSS--INFERIOR PETROSAL SINUS SAMPLING. I made an appointment with my PCP and sat down and told him how frustrated I was and that I really wanted this last test ordered so I could have more "evidence" of cushings and that this test would help determine which side of the gland the tumor was on.  My dr said if he could, he would order it, and by me coming and asking him for this test, it really shows him how much I must suffer. N...

My name is Meagan Maureen Jenkins I am 26 years old.  I am married to my best friend Matt and together we have three beautiful children.  Owen, age 6. Isabelle nearly 5 and our baby is already just over 2.5!  Matt and I met the summer of 2004, at Kohls Department Store in Madison where I got a job as a cashier after losing my job as a CNA because of health problems, which I now know where and are related to my Cushing's diagnosis.  Before I had the painful symptoms of Cushings my life was very different.  I spent a lot of my free time running around, swimming and playing.  I was involved in sports and loved playing “house” and dreaming of the life I would one day have when I built a family.  I loved running, I use to run 3-5miles a day and ran in many different races!  I spent time volunteering at my church, and helping elderly neighbors anyway I could.  I spent many weekends feeding the homeless and bringing them things they needed to...